This is an archived article that was published on sltrib.com in 2014, and information in the article may be outdated. It is provided only for personal research purposes and may not be reprinted.
Francisco Kjolseth | The Salt Lake TribuneCatrina Nelson of West Jordan holds her daughter Charlee, 6, who suffers from Late Infant Batten Disease, a terminal inherited disorder of the nervous system that leads to seizures and loss of vision and motor skills. Her daughter who is on hospice care at home has been surrounded by friends and family as they comfort one another during her final moments.