Boo said he misses having them at home.
"After they had Alzheimer's, they knew who I was," Boo said. "But they couldn't remember my name."
Sen. Karen Morgan, D-Salt Lake City, and Rep. Carol Spackman-Moss, D-Salt Lake City, are cosponsors of SJR1, the Alzheimer's State Plan Joint Resolution, now moving through the Legislature. A 20-member task force made recommendations that encourage state agencies, the private sector, the media and corporate and philanthropic organizations to make Alzheimer's disease and related dementias a top priority. Morgan says she also is working on a bill that would put some of that plan into statute.
Key to the effort is eliminating the stigma that surrounds sufferers and their families by bringing the illness into the open.
Boo plays football with a recreation league team called the Royals. He asked team members to wear purple socks for a game purple is the color for Alzheimer's awareness and posted his plan on a web site. Eight other rec teams wore purple socks, too. At Boo's game, his parents hung a banner that said, "Royals knock the socks off Alzheimer's."
He wants other kids to understand what is happening with their older relatives when they have dementia. "It's not a good disease," he said. "If your grandparents get it, try to spend more time with them."
Utah's Alzheimer's plan
During 2011, the Utah State Plan Task Force took comment from Utahns with Alzheimer's disease and family members, medical and human services professionals and other state residents to develop a plan to combat the rise in Alzheimer's and related dementias.
According to the task force report:
Utah will experience the highest growth rate of Alzheimer's disease and related dementias, at 127 percent, exceeding any other state.
Half of all people with Alzheimer's in Utah are in the early stage of the disease.
Most caregivers 75 percent are women; 41 percent are spouses; and half are adult children.
Many Utah families, particularly in rural areas, do not have access to post-mortem diagnostic services to know if their loved one did in fact have Alzheimer's.